A Gluten Free Podcast

Send us Fan Mail
A Gluten Free Podcast
Episode 245

On today's episode we share the story of Isla's coeliac disease diagnosis told by her mother Isla and how they made the goal to run a marathon for coeliac disease awareness.

What we'll cover:
* Reflecting on Glenn and Harley's story a few weeks ago
* How I found the story of Isla and her mum, Kirsty
* Isla's coeliac disease symptoms
* The pizza that changed everything
* Trying to find the problem behind Isla's health issues
* Isla being dismissed by health professionals
* Isla's consistent sicknesses
* Daycare employee suggesting to keep a food journal for Isla
* Doctor testing for coeliac disease and confirming via repeated blood test
* Relief after Isla's coeliac disease diagnosis
* The worry and alertness still lingering
* The transition to gluten free life for Isla
* How Isla and Kirsty found the Edinburgh Marathon
* The support around Isla's fundraiser for Coeliac UK
* The amount of awareness needed around coeliac disease in the UK and throughout the world
* My closing thoughts

Links
Follow @coeliacmamma on Instagram
Read our blog post on Isla's fundraiser
Original article: Musselburgh girl 'smashes' junior marathon for Coeliac UK
Join A Gluten Free Podcast Facebook Group 
📬 Stay connected:
Instagram: @a.gffamily
Sign up to our newsletter
Email: hello@aglutenfreefamily.com.au
This podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. 
Support the show

Send us Fan Mail
A Gluten Free Podcast
Episode 244
 
My guest on today’s episode is Associate Professor, gastroenterologist and world-leading coeliac disease researcher, Jason Tye-Din. We’ll talk about the latest updates on the Interleukin 2 blood test, updated advice around oats as part of a gluten free diet and all the other incredible research he and his team at WEHI are currently undertaking.

What we’ll cover:
* Introducing Jason and our previous episode together
* How coeliac disease is a systemic autoimmune disease that affects all parts and organs of the body
* How the Interleukin 2 diagnostic tool works
* Interleukin 2 blood test being used in various other coeliac disease research trials
* Interleukin 2 blood test used in the Gluten Threshold Study to determine if T cells are being activated when participants are ingesting very low levels of gluten
* Interleukin 2 (IL-2) blood test soon to be used in a trial involving children
* Updates around this blood test and implementation plans
* Non-biospy approach in diagnosing coeliac disease and how IL-2 could play a part in this
* Working on a salivary coeliac disease test
* How the IL-2 test might work in people with potential coeliac disease
* Gluten Threshold Study and how IL-2 was used in the study
* The response from the Gluten Threshold Study
* World Health Organisation reference threshold for gluten and possibility to clear up confusion around ‘may contain gluten’ statements
* Defining an action level in a standard serve of food
* Jason’s advice on enzymes that claim to break down small amounts of gluten
* Importance of not using symptoms as a measure of being glutened or not
* Possible adjunct management drugs and other therapeutics other than a strict gluten free diet for people with coeliac disease
* Advice for oats as part of a gluten free diet for Australian adults and children living with coeliac disease
* ENDIA (Environmental Determinants of Islet Autoimmunity Study) updates
* Eotaxin and brain fog coeliac disease study
* Pros and cons around population screening of coeliac disease
* NSW school children being tested for coeliac disease and Type 1 diabetes
* International Celiac Disease Symposium 2026 in Melbourne

Links
Contact the nurses to be involved in WEHI studies - coeliac@wehi.edu.au
Professor Jason Tye-Din’s previous podcast appearance
Suitability of Oats as part of a gluten free diet for Australians living with coeliac disease
ENDIA study
https://www.icds2026.org/
Coeliac Disease Research Lab
Join A Gluten Free Podcast Facebook Group 
📬 Stay connected:
Instagram: @a.gffamily
Sign up to our newsletter
Email: hello@aglutenfreefamily.com.au

📸 Photo credit: WEHI. 1G Royal Pde Parkville 3052 VIC Australia. https://www.wehi.edu.au/
This podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. 
Support the show

Send us Fan Mail
A Gluten Free Podcast
Episode 243

On today's episode we have an inspiring story from the UK about a young girl named Harley. It’s told from the perspective of her father Glenn Hansen, detailing how his daughter’s personal struggles with coeliac disease led her to climb the mountain top to raise funds and awareness, figuratively and literally!

What we'll cover:
* How I found out about this news story within our gluten free community from a former podcast guest and a podcast listener connecting me with Glenn, the father of Harley
* Harley's coeliac disease symptoms leading up to her coeliac disease diagnosis
* Avoiding the gluten challenge and diagnosing off raised coeliac disease antibody levels
* How Harley, Glenn and the family have adjusted to gluten free life for Harley
* Struggles Harley and the family have
* How much Harley and the family have learned since her coeliac disease diagnosis
* Harley beginning to advocate and educate others about her coeliac disease and gluten free diet
* How the idea for the climb came about
* Preparing Harley for the climb
* Raising money and awareness through the climb
* Response from the coeliac disease and gluten free community within the UK and throughout the world

Links
Harley’s Just Giving page
Read Harley and Glenn's climb for Coeliac UK
Original news report leading up to the climb
News report after the climb
A report about the response from the post climb article
Facebook page on Harley’s training

Join A Gluten Free Podcast Facebook Group 
📬 Stay connected:
Instagram: @a.gffamily
Sign up to our newsletter
Email: hello@aglutenfreefamily.com.au 
This podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. 
Support the show

Send us Fan Mail
A Gluten Free Podcast
Episode 242

My guest on today’s episode is Gastroenterologist and Director of the Coeliac Disease and Immune Health Research Program at Wesley Research Institute, Dr James Daveson. We’ll talk about the Gluten Threshold Study results, how these results could inform international gluten free standards and the need for follow up larger scale studies.

What we’ll cover:
* Aim of the study and what prompted it
* Using Interleukin 2 to measure immune response in participants
* How the Interleukin 2 test was used as a biomarker in this specific trial
* Exploring the question of inadvertent gluten ingestion in causing damage to villi in people with coeliac disease
* Carlo Cattassi’s study in 2007 looking at the minimum amount of gluten causing an autoimmune response
* James and his team looking at what is happening for people with coeliac disease consuming 10 mgs of gluten and under
* The hawthorn effect
* Specifics of the trial and how the study was run
* Dropping the dose of gluten to see where the autoimmune response was occurring at lowering levels
* Findings from the study
* How the results could possibly change labelling and ‘gluten free’ standards and guidelines not only in Australia but worldwide
* Codex Alimentarius food labelling laws
* Shortcomings from this trial
* The potential heterogeneity of coeliac disease (various scales of severity of the disease)
* Eliciting dose of gluten for people with coeliac disease
* Varying symptoms of the participants throughout the Gluten Threshold study before and after the gluten challenge
* Mistakes and surprises in the Gluten Threshold Study
* Symptom scores
* Anticipatory nausea and priming
* The possibility of the immune system being primed before the ingestion of gluten for people with coeliac disease
* The trauma of living with an autoimmune disease or other IBD conditions
* Possible follow up studies from The Gluten Threshold Study
* How this study could be used to a more universal approach to the ppm of gluten
* Digestive Diseases Week in Chicago and how the response from the Gluten Threshold Study
* The interest in novel therapeutics for people with coeliac disease to help people’s guts alongside a gluten free diet
* Enzymes that claim to break down inadvertent gluten ingestion for people with coeliac disease
* Information on how to read the results of the Gluten Threshold Study, participate or help fund future studies and follow Wesley Research Institute on socials

Links
Gluten Threshold Study Results
Wesley Research Institute: Coeliac Disease and Immune Health
Follow Wesley Research Institute on Instagram and Facebook
Join A Gluten Free Podcast Facebook Group 
📬 Stay connected:
Instagram: @a.gffamily
Sign up to our newsletter
Email: hello@aglutenfreefamily.com.au 
This podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. 
Support the show

Send us Fan Mail
A Gluten Free Podcast
Episode 241

On today's episode I share 5 protocols I've added to my health routine since my coeliac disease diagnosis. When you're diagnosed with coeliac disease, it's not all just about going gluten free. There's so much more we can do to help our physical and mental health.

What we'll cover:
* Cold therapy and ice baths
* My episode with Benjamin Berry on the podcast
* The benefits of yoga, especially when I'm having a flare up
* Going to the gym or exercising in some capacity
* Importance of strength training for bone health
* Meditation and sound baths
* Recent collaboration of yoga, sound bath, Wim Hof breathing and ice baths

Links
Episode with Certified Wim Hof Instructor, Benjamin Berry
Wim Hof breathing video
Founder of The Bone Clinic, Belinda Beck episode
Boho Beautiful meditation
10 Minute guided meditation by Annie & Justin
Yoga, sound bath, Wim Hof breathing & Ice baths event

Join A Gluten Free Podcast Facebook Group
📬 Stay connected:
Instagram: @a.gffamily
Email: hello@aglutenfreefamily.com.au 
This podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. 
Support the show