Voices From Voluntary Assisted Dying

Kimberly shares the deeply personal experience of supporting two loved ones through motor neurone disease and voluntary assisted dying. Rohan who declined rapidly after his 2020 diagnosis, discovered accessing VAD was slow and complex. It was worsened by institutional barriers and limited information, but ultimately his death via PEG-administered VAD was peaceful and the least traumatic part of his illness. When Kimberly’s mother was diagnosed with bulbar-onset MND, Kimberly used the knowledge she had gained to plan early, secure approvals, and preserve choice. Her story highlights the emotional toll of MND, the importance of timely information, and the profound value of autonomy at end of life. Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department. If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

The world’s first voluntary assisted dying law to be enacted and used was passed in Australia’s Northern Territory – only to be overturned months later by the Federal Parliament. The man behind that historic legislation is Marshall Perron. As Chief Minister of the Northern Territory from 1988 to 1995, he introduced the Rights of the Terminally Ill Act, a groundbreaking and controversial step forward in end-of-life choice. The law was overturned by the Australian Federal Parliament in March 1997 through the Euthanasia Laws Act 1997, which removed the power of territories (like the Northern Territory) to legislate on euthanasia. For the first time publicly, Marshall Perron shares his thoughts on the process: the political determination it required, the national and international fallout, and the personal decision to resign before the final vote. He also shares his disappointment that the Territory – once a pioneer – remains the only jurisdiction in Australia without VAD laws. NTVES (Northern Territory Voluntary Euthanasia Society) https://ntves.org.au/ COTA NT (Council on the Ageing, Northern Territory) https://www.cotant.org.au/ Northern Territory Government – Parliamentary (Committees / Legal & Constitutional Affairs) More information on into “Voluntary Assisted Dying in the Northern Territory – Second Interim Report, September 2025” https://parliament.nt.gov.au/committees/list/legal-and-constitutional-affairs-committee/VAD Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department. If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

Dr Lynn Arnold once stood firmly against voluntary assisted dying (VAD). Initially concerned about the potential for abuse, his perspective changed after witnessing the prolonged suffering of his cousin and, later, supporting his mother through her own VAD journey. Her decision, carried out with dignity and care, revealed to him the system’s safeguards and the emotional depth of choosing death on one’s own terms. The Honourable Reverend Dr Lynne Arnold is a former state parliamentarian and premier of South Australia. He has held leadership roles with World Vision and Anglicare SA. Today he serves as an assistant priest at St Peter’s Anglican Cathedral, a theology lecturer at St Barnabas Theological College, and a patron or ambassador for numerous organisations including the Don Dunstan Foundation, Reconciliation SA, and the United Nations Association of Australia. He speaks candidly about the internal conflict, the healing power of compassionate medical care, and the importance of support for both the person choosing VAD and their loved ones. He also discusses how his theological views evolved, emphasising the Anglican Church’s openness to individual conscience on the matter. Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department. If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a daySee omnystudio.com/listener for privacy information.

Voluntary assisted dying isn’t just about law – it’s about people, compassion, and choice. Dr Peter Allcroft, one of South Australia’s most influential leaders in palliative care and voluntary assisted dying, shares how his professional journey has led him to this deeply meaningful work. Starting as a respiratory and sleep physician, Peter transitioned into palliative care, driven by a desire to support patients through every stage of life-limiting illness, particularly motor neurone disease. Now Chair of Palliative Care Australia and co-clinical lead for South Australia’s VAD services, he discusses the emotional depth, ethical complexity, and clinical evolution of end-of-life care. Peter explores the importance of patient-centred decisions and the quiet power of listening, empathy, and dignity at life’s end. Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department. If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

Casey Haining is a Research Fellow and PhD candidate at the Australian Centre for Health Law Research at QUT and also holds a research position at the University of Melbourne. Her academic work focuses on health law and end-of-life care, particularly voluntary assisted dying (VAD) and dementia. Casey discusses the complexities of VAD eligibility for people with dementia, especially around decision-making capacity and prognosis requirements under Australian legislation. She compares international approaches, such as those in the Netherlands, Belgium, and Canada, which permit access under broader criteria or via advance directives. Casey also shares insights into her current research, including an exploratory study on VAD and dementia in Australia, aiming to inform future policy development through citizen juries and practitioner engagement. Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department. If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a daySee omnystudio.com/listener for privacy information.